Well I was supposed to go to St Pete Florida for a scope since my valve is slipped or just really fucked up. But the same fucking GI that I flew down for before and didn’t scope me due to his golf schedule is going on vacation. It pisses me off since I picked the POP and Rhenke thinking my aftercare would be good. I am starting to wish I did all of this at a teaching school like Cleveland Clinic. Anyway. I have wasted more money on this fucking GI and over it. Someone should at least make it right, I am tempted to bill someone for both airline tickets I purchased. Sometimes it is just not worth having surgery out of town I guess but what did I know? I am not bitching about the BCIR team totally. I do believe they need more doctors on board with this program though so there is just more care. There can’t be one GI on staff that is a douche bag and from what nurses tell me, “a total asshole with no care in the world.” Guess I should have taken those words to heart.
So I saw Dr Jacobson here and he is doing another scope. The last scope he knew my valve was on a serious angle but he told me to be optimistic and maybe surgery for this won’t be needed. I am starting to worry about my veins, they blow and are tiny as is. I have to get 2 IVs next week. Iron infusion #2 and the Flex sig of my pouch.
My CT scans came in and of course my rockin’ GI said she needed someone else to look at the scan that is was out of her area and she doesn’t like to take chances with me. There are 3 pockets of fluid in my pelvic area. I went to Jacobosn about having it drained since my Oncologist thought maybe this was contributing to my pain but he said he doesn’t believe this is related to my pouch and more related to OB so I am now going to another doctor. I have a small renal cyst and a 1.2 cm cyst on my right ovary and fluid is built up on the left. So of course for me I have the concern of Ovarian Cancer. It could be possible since well I do have FAP. It is VERY VERY rare we get Ovarian with FAP but hey that’s what is in my head. I have 2 small hernias one in my 6 pack abs (lol I love having them but can’t see them with a layer of fat on them!) and one small one in my stomach that I have had for a bit now. I also have skin lesions or an abcess in the subcutaneous fat along the inner gluteal cleft.
I am half tempted to reschedule my Duodenum ablation to another month. I go to the pouch guru at Cleveland Clinic on Sept 25th now instead of Oct 2nd, it got moved up.
I have been on Omniceff for about 2 weeks now and so far doing good as far as pouch is going. I still have extremely bad pain from my ribcage, back and down to my vagina basically. it feels like pins and needles are in me. It is funny when you think of just how much pain you can tolerate. I am tired though. I want my life back, I want to work out. I have gained 5 pounds and that is depressing but when I work out lately my valve is more fucked up so I get nervous. If I had money I would try to do rolfing to break up possible adhesions but insurance doesn’t cover that and it’s a good 600 bucks for the amount of sessions you need. Hopefully I will be able to work soon, if I can even find a job. I apply just to see what is out there but no dice.