It turns out my 2nd upper scope in 2 weeks will be Monday and then hopefully this will be the last and I can go on the 6 month routine. NO HANDS ALLOWED. As I mentioned before, my right hand that blew the vein is totally fucked from this idiot nurse putting the IV in my nerve then my vein and she knew it was going to blow but stepped away to get a bandaid before removing it. My whole right hand still feels damaged, it goes numb at times then feels like it is freezing to on fire. It is also a still solid black color with some blue hues to it. So arms only from now on. This is my body, I call the shots.
Since I am part of Boland’s trial study for FAP a little bit more goes into my case. I guess that is a good thing. All the doctors here are trained to deal with FAP and LYNCH cases. So my GI, she went and looked at my nasty polyp (as she called it) and said they have to go back in and make sure they got it all out that it looked very bad under the microscope and didn’t want to risk waiting. Another GI will be there so we had to book this upper on his schedule too, usually it’s a Friday. So yay for more pain. My pouch hurt after the last upper a couple weeks ago. Not sure why, it wasn’t touched. Maybe just trauma in general and gas build up. I also had a viscous IC flare so I don’t look forward to that and lets not forget the throat being butchered. I once thought uppers didn’t hurt but now if I had a colon I would prefer the colonoscopy. I guess once they start hanging out and doing more stuff up top the throat hurts like hell. Makes me sick for a day or 2.
Also she can see if the sublingual previcid is doing anything since she gave it to me 2 weeks ago for my severe esophigitis and gastritis. I can’t get rid of the esophigitis, the ulcer isn’t present anymore so I guess Nexium worked for that but this is going on a long time now and once the cells change it turns into cancer. I am basically one big cancer cell. I can’t remove anything else so that is a very nervous state to live in. All it took was a few months.. I just had my colon removed and I grew this crap fast. Must be nice for the people with FAP that just grow small adenomas. That isn’t my case. You can’t escape your own body that in the end will kill me. Just love my DNA.
Chemo if needed, I don’t see the point for. We can’t stop forming these things. I think it will be time to retire to the beach. Something I wanted to do instead of taking my colon out. Steve Jobs was on to something and I should have gone with my gut feeling to never have had any surgery and just lived the last of my life out.